Wednesday, March 31, 2010
Really, your kid is an honor student...well that's great...oh mine...yeah he has an extra chromosone...beat that!
It all comes from wanting answers...and boy howdy did i get my answer. See the cutie pie up above...that's Gavin, my youngest. he is a pip let me tell you! didn't expect to have a 4th kiddo but he sort of snuck past his father's vasectomy and well...boom there he is.
A difficult child at birth he continued with that trend through toddler-hood. Was diagnosed with autism at age 2...we cried, then got learning.
At age 6 he was diagnosed with epilepsy...we cried, got meds, then got learning.
At 7 he was thought to have a really huge named disorder but essentially it was because of large cafe au lait birth marks on his body...tests came back negative..we cried (this time with happiness) and took the suggestion of genetic testing..yah know, for shits and grins...nothing better to do with our time.
Yesterday, we found out Gavin has 47 chromosones (while the rest of the regular folk have 46) and a disorder called Isodicentric 15. I cried, and cried, and cried...ate some chocolate...and got learning.
Not much changes as of yet. We get new meds for the ADHD that has decided to rear it's ugly head (since his epilepsy is under control..it made room for the ADHD to come on over) we get continued therapy...and we get to add a cardiologist to the list of doctors because with this new name, we magically get a possible heart condition, and we have to watch his kidneys.
Let it be said, when we do something in this house we do it ALL the way!!
for more information on Isodicentric 15 please visit www.idic15.org
Saturday, March 27, 2010
Thursday, March 25, 2010
Wednesday, March 24, 2010
Tuesday, March 23, 2010
So as the weather sloooowly gets warmer here in the great North East I think yippee and then awwww because it will mean having to put away my socks. I love socks, well not just any socks...i like these socks...Soulmate Socks made in Vermont. Ok ok so as a rule i am not this picky about clothing and name brands and what not...but if you have ever slipped a pair of these onto your feet you would understand. They are wonderfully mismatched on purpose (because life is too short to wear matching socks is there motto) and so cottony and warm...ahhh and the colors!! Super Cute!! I wear them to school all the time and my feet feel good all day, the kids can catch a peek at them under my crocs and it makes them laugh that "Mrs. Jette can't match her socks!" My favorite Christmas present this year was my box full of socks..OH and they are awesome to hike in...not only do you look super cool with them under your hiking boots but your feet stay dry and comfortable!
******** WARNING, THE FOLLOWING IS FOR THE LADIES EYE ONLY...MEN THIS DOES NOT APPLY TO YOU...YOU HAVE BEEN WARNED ********
oh yes, today is my "big girl" doctor appointment....fun fun fun, i'll be wearing my socks...makes my gyno laugh, and lets face it...his job isn't the most pleasant, he needs a laugh.
Friday, March 19, 2010
Ok, it innocently started as a joke, and a few years back. My Cody was totally in love with this former neighbors yard/garden that was a gnome bedecked delight...she really had a fantastic garden. so we started buying our own gnomes, and every spring we add another to our collection, never spending more than a few dollars on each....needless to say, they are a little tacky...add in his Big Mimi (his beloved great grandmother) who dares not visit without bringing a new gnome to his collection and you have a yard full of gnomes. Tomorrow is the first day of Spring, so out they came and he very carefully arranged them around the yard, peeking out behind a shrub or placed were they will be hidden (eventually) by flowers, he is 9 and really how many more magical years do i have left before he becomes a moody pre-teen then morphing into the "i was hatched, i do not have parents" teenager so yes i encourage the gnomey behavior! So happy Spring to all...and get out there and plant a gnome...or a dozen :)
Thursday, March 18, 2010
Wednesday, March 17, 2010
so today it's all about cleaning closets...not exciting to say the least but badly needing to be done
Tuesday, March 16, 2010
Sunday, March 14, 2010
Saturday, March 13, 2010
This gorgeous feline is my beloved cat Hyacinth. She is such a diva...her entire day is spent eating and sleeping...and i have terrible cat envy! Oh wouldn't it be nice just to lounge around all day...get up, eat a little something and then continue relaxing until someone sits on the couch...then get up, snuggle, get my ears rubbed and maybe eat something a little later.
Friday, March 12, 2010
Thursday, March 11, 2010
Wednesday, March 10, 2010
so guess what i just ate for lunch?
Tuesday, March 9, 2010
Monday, March 8, 2010
Saturday, March 6, 2010
It was the perfect pre-spring day today here in North Attleboro, the sun was out in full force, the temps ran into the 50's , birds singing, sap flowing....yes you heard me sap...it's that magical time of the year when it's time to make the syrup! Oh there is nothing like early season maple syrup, it's light and sweet and just screaming for pancakes!! We took a little trip (and i mean little, 2 minutes up the street) to our friend Dave and Ellen's house where they started making maple syrup as a hobby a few years back, each spring they roll the boat out of the huge shed and convert it to a sugar shack...they tap neihborhood trees when the weather starts to warm up and usually have a pretty good supply of sap. The wonderful thing is about this friendly and down to earth couple is that on the weekends they invite EVERYONE to come down and see what it takes to make that golden goodness. Scout troops, friends, kids from school (Ellen was my Cody's first grade teacher and is by far the most patient and caring teacher i have ever met...we just love her to bits) and just people passing by..they will take you by the hand and explain the entire process. You can tell this is something they enjoy doing...and quite frankly my family is so spoiled by their syrup they cannot even think of getting any at the grocery store...oh no, it's Cournoyer Syrup or nothing. Matter of fact, we have to buy the 1/2 gallon bottle!!! i use it in baking of all kinds and of course they are always willing to share a recipe or two with us.
So while i purchased our tub of syrup, Cody, Brendan and their friend Philip kept Jack the sap dog busy by playing fetch for a good 1/2 hour....that dog should sleep well tonight.
I stood staring at my flower beds and trees noticing the little buds and small green shoots gently poking their heads up to say hi to the sun and the possibilities of what is to come just filled me with such longing for the warmer days ahead.....oh wait, it's stick pick up day tomorrow with the teenagers....yah, not really longing for that....oh well, good with the bad right?
Friday, March 5, 2010
this weekend is the Pick Up the Sticks Extravaganza at our house (Insert moans and complaints from the children....here) as most of our front lawn is covered in fallen branches and sticks. all they have to do is make a nice pile and we will use them in the outside fire place...which is one of our favorite things to do in the summer, sit by the fire, roast some marshmellows and makes Smohes....ahhh summer, seems like such a distant memory :) now the weather for Sunday is calling for warmth and 50's again, i was hoping to fire up the grill and get some burgers and roasted veggies going BUT when i took a peek in the grill i noticed it had become a winter chalet for a small, fuzzy creature...i think we scared the crap out of each other, i tried to get a picture but it darted away...so....since winter isn't over yet, do i evict my latest tennent to the cold or do i just make the burgers inside and let him/her/it ride out the rest of the season? Sigh.
Wednesday, March 3, 2010
Monday, March 1, 2010
So we braved the snow squalls and white out conditions and traveled up north for the Starpower dance competition in Concord, NH, leaving the boys back home to fend for themselves (pizza for dinner and unlimited part scratching...occasional burping and farting) Now Concord is a lovely little town, very cute and lots of nice shops...and if there was any power we would have had a great time. Oh yes, due to a freak wind storm most of that part of New Hampshire was in a blackout situation. The hotels were jammed with people who couldn't get into the emergency shelters, it was kind of sad. We met up with a man and his kids in the elevator and he asked us how long we had been without power, i told him we were up for a dance competition..."oh a vacation, how nice for you" and how i wished a big black hole would open up and swallow me and baby diva right up...yes guilt is a horrible thing.