My son has isodicentric 15. A duplication of chromosone 15. No, you can't remove the extra bits...and yes I did ask. This duplication can cause epilpesy, ADHD, and autism. We got blessed with all 3.
Today, finally, his neurolgy team listened to my desperate plea to help him, me and his siblings. Today we started Ritalin. I cannot tell you the marvelous change in him. He is calm, nobody has been hit all day, he is talking in nice conversations, he is playing on his own and with his brothers....wow....wow wow wow!
Don't judge! I've tried changing his diet, chiropractics, chanting, drumming, horse back riding therapy. I didn't just say "give me the drugs dammit" but now that i see how much happier he is with a calm brain...i kick myself for not doing this sooner. I cried a little today for the loss of the turbo charged kid I've known for the last few years but said hello to the little guy asking me to sit and play trains with him...and I did so without having to resort to ninja like moves to avoid a wicked hair pulling :)
You've done everything you could...I've watched for years the pain and struggle you've gone through..you made the best choices you could in the best interest of Gavin and everyone else. I love you to the moon and back xo
ReplyDeletethank you Diva...i think it's going to be very interesting to watch him finally be happy!
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